Blogtavism: My Story
I didn't need coffee to fire me up this morning. What did it? Reading Flicka's post about the lukewarm response from politicians when she raised the issue of better insurance coverage for those combating infertility. Mel has joined her in looking to underscore the effort to help enlighten politicians with real stories about why this is such an important issue through an effort called Blogativism. Here's my story. I'll be mailing this to my representatives:
Why Insurance Coverage for Infertility Would Have Made a Difference
I was diagnosed in my early 30s with endometriosis, a condition that can prevent otherwise healthy women from successfully conceiving. My husband had been diagnosed with varicocele, a condition that also contributes to infertility. Together they torpedoed our likelihood of ever becoming parents naturally. Doctors told us our odds of success the old fashioned way was in the teens, but that new medical techniques known as ICSI (intracytoplasmic sperm injection) combined with IVF (in vitro fertilization) had led to breakthrough results: babies. We immediately made appointments to see reproductive endocrinologists (REs) to learn more.
While surgery wasn't our first choice, and we were reeling from news about our biological factors, we were in for greater shock when we learned that the necessary medical procedures were not covered by our health insurance. Two different RE clinics quoted $18,000 for one cycle. It was a monumental setback. The cost being prohibitive we opted to see if less expensive treatments might work. They didn't. In the meantime nearly four years later, desperation set in. My eggs had not improved with age but we had no choice. We paid the $18,000 for ICSI IVF and joyfully learned that we've made five viable embryos. Sadly, no pregnancy resulted. We tried again. No baby.
We know that time is not on the side of couples who want to conceive. Would our outcome have been different if we'd had health insurance available? We'll never know, will we? I hope that no other couple has to grapple with that dilemma. To walk by empty bedrooms and wonder if a son or daughter might have come if money had not been such a significant factor ... it's a horrible "what if" to live with day in and day out.
We are not alone. There are 7.2 million couples in U.S. having trouble conceiving. Let me put a human face on this. Both my husband and I have been working and paying taxes since we were 15 years old. We have voted in elections since we were eligible. My husband served in the Navy. We have been active in efforts to make our neighborhoods safer, our schools stronger and our environment cleaner. We are members of RESOLVE, the national infertility association, but we need greater political support, we need your help. Please make every effort to broaden health insurance coverage for couples fighting infertility. Thank you, in advance, for your active efforts to do the right thing.





Well said!
One of the ironic things about infertility is that when you are young enough to have the best chance of fertility treatments working, you are least likely to be able to afford them.
It's frustrating that so many people have opportunities removed that are free for others. Thank you for writing this.
Very well written.
I think that's a good point. People say, "Oh, well you waited too long," and often the answer is, "Yes, well we were saving for IVF!" The trick is to let people at it when they have the best chance.
Bea
This is a tough one - getting insurance companies to expand their list of covered conditions to include infertility (and still having premiums be affordable). Tougher still would be to get them to cover IVF as well as alternative treatments that can substitute for or complement IVF treatment and treat the whole individual instead of just propping up our reproductive systems. I too was at least in my mid-30s before we could even think about affording IVF. Still, it's not even the loss of $12,500 that bothers me, it's all the tinkering with my body that yielded nothing! I wish the approach to infertility treatment were more holistic and that this was recognized by the medical establishment and the insurance industry both.
I'm a newlywed and I've had endo for 20 years. I'm 34 and we've been told we have about a 30% chance of getting pregnant without some "help". The only thing is that "help" costs $25K. My husband and I feel so cheated that we have to pay to have children. Anyway, I'm venting, and I empathizing with your comments. So glad I found your blog.
Thank you for this post. I find it really hard to swallow that viagra is usually covered, but that fertility meds are not. I know I am not the only one who thinks this...but I bet the people who sit at the executive suite office at the insurance company are all men past their prime, right? They have grown kids and can't get it up anymore...so viagra is covered. We need some infertiles at the helm of the health insurance companies and in our legislative offices!
So very well put, PJ. It is sad in the extreme that functional, working, sensible taxpaying adults who would generate children of the same ilk are not given more help. Sad.
Keep shouting!
Even in South Africa this is an issue, and if it was covered by our insurance way back then, today might've been so different.